It’s an exciting time for DYSCERNE’s guideline development programme. The group that are responsible for developing guidelines for Angelman syndrome met on (26th January), in Manchester to present and discuss the findings and recommendations from the completed literature reviews, and to define the content and format of the guideline. Between them, the group have reviewed more than 200 papers selected from the 1500 identified in the initial PubMed searches. Following on from the meeting, a draft guideline will be prepared and circulated amongst the guideline development group for feedback and approval. The final guideline will be freely available as a download from the DYSCERNE website.
Published 01/02/10